News and Stories
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.
Improving Access to Care for Sickle Cell Warriors
In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.
Network Celebrates Launch of Voices for PEN-Plus
“We know what is best for us,” said Anu Gomanju, a person living with rheumatic heart disease in Nepal. “That’s why our needs and voices need to be prioritized.”
Gomanju made that statement in late September, during the online launch event for Voices for PEN-Plus. Sponsored by the NCDI Poverty Network, Voices for PEN-Plus brings together people living with severe, chronic, noncommunicable conditions to advocate for PEN-Plus implementation in sub-Saharan Africa and South Asia.