Type 1 Diabetes

The NCDI Poverty Network’s recent week of advocacy in Rwanda included visits to two hospitals, a conference with more than 700 attendees, a panel with four expert speakers, and one recurring theme: the recognition that PEN-Plus is an effective model for mobilizing action and financing to increase access to care for people living with severe, chronic noncommunicable diseases.

As a panelist during a recent international diabetes conference in Copenhagen. Dr. Ana Mocumbi, co-chair of the NCDI Poverty Network, highlighted the power of integration in helping to achieve global health equity.

The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.

In a new video, Lucy Johnbosco, a member of the NCDI Poverty Network’s Steering Committee from Tanzania, offers her perspective of what it takes to change perceptions of type 1 diabetes in places where many people have limited understanding of the condition.

Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.

In recognition of World Diabetes Day, educator and advocate Edith Mukantwari shares her personal story of living with type 1 diabetes in Uganda, the lessons she’s learned, and the importance of a supportive community.

The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.

In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.

The Network has published PEN-Plus Clinical Tools and Programmatic Standards, a document aimed at informing clinic planning, budgeting, and operations by providing a crisp definition of PEN-Plus clinical care, including the diagnostic, treatment, and patient support services available.

In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.

A recently published study of people living with type 1 diabetes in two rural clinics in Malawi found a high level of acceptability and satisfaction among those using continuous glucose monitoring, suggesting that the technology is feasible in low-income settings.

Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.

“It is inconceivable that a 20-year-old man would weigh only 55 pounds,” said Bright Mailosi, a specialist in noncommunicable diseases. “So much could have been done to intervene when he was first diagnosed with type 1 diabetes. Although I wish PEN-Plus had arrived in Karonga years earlier, I’m excited that we’ve changed the narrative of how complex NCDs are managed in rural areas.”

“Tawonashe is exactly the kind of patient for whom PEN-Plus was designed,” said Dr. Alvern Mutengerere, project manager for noncommunicable diseases at SolidarMed, the implementing partner for the PEN-Plus clinic in Masvingo.

“Much of my outreach work is focused on diabetes education because it’s important to eradicate the many misunderstandings about the condition. When I get in front of people, the first thing I say is that I’m living with type 1 diabetes. My energy and enthusiasm silence the voices that said I would die. People who live with type 1 diabetes and other severe noncommunicable diseases are no different from anyone else.“

A team that included NCDI Poverty Network Steering Committee Co-Chair Gene Bukhman as well as Type 1 Diabetes and Global Health Equity Research Fellows Celina Trujillo and Apoorva Gomber traveled to Abu Dhabi to represent the Network and promote PEN-Plus at the 48th annual International Society of Pediatric and Adolescent Diabetes (ISPAD) Conference, 13-16 October.