News and Stories
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.
Photo Gallery: Circle of Life
In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.
Springboard for Action
The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.
Network Publishes Clinical Tools and Programmatic Standards
The NCDI Poverty Network has published PEN-Plus Clinical Tools and Programmatic Standards, a document aimed at informing clinic and program planning, budgeting, and operations by providing a crisp definition of PEN-Plus clinical care, including the diagnostic, treatment, and patient support services available.
Improving Access to Care for Sickle Cell Warriors
In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.
Back in Play
For several years, the local health center had dismissed Fatmata Fofanah’s symptoms as the common cold. Yet those symptoms continued to worsen. “We noticed her heart was beating fast and she was short of breath,” said her mother, Mariama. “Even a few minutes of play would make her heart race.”
Network Hosts First Advocacy Summit
Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.
Language Matters: Both a PEN-Plus Primer and Promise
The NCDI Poverty Network has produced “Language Matters,” a primer intended to sensitize PEN-Plus providers to the communication nuances involved in caring for people living with severe, chronic noncommunicable diseases.
Network Cohosts National Cardiac Technical Working Group
In May, the NCDI Poverty Network, in partnership with the Rwanda Ministry of Health and with support from Team Heart, launched a national Cardiac Technical Working Group.
PEN-Plus Providers in Zimbabwe Receive Cardiac Training
In May, eight PEN-Plus providers in Zimbabwe received initial training in performing and interpreting echocardiograms. Those eight providers—along with seven others—were also trained in managing heart failure.