News and Features
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
Eunice Owino, a Voices for PEN-Plus advocate, spoke about her lived experience with sickle cell disease during the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October.
Photo Gallery: Circle of Life
In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.
Springboard for Action
The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.
Building for the Future
The PEN-Plus clinic in eastern Uganda began as a gathering under a tree and has blossomed into a standalone structure with consultation and treatment rooms, a training center, and a pharmacy.
Surguja Sickle Cell People’s Health Conference in Chhattisgarh, India
Over 400 people came together on 1 October to advocate for the needs of people living with sickle cell disease in Chhattisgarh State in central India.
Undaunted Spirit Despite Dual Diagnoses
“Tawonashe is exactly the kind of patient for whom PEN-Plus was designed,” said Dr. Alvern Mutengerere, project manager for noncommunicable diseases at SolidarMed, the implementing partner for the PEN-Plus clinic in Masvingo.
From Patient to Advocate: The Story of Eunice Owino, Sickle Cell Warrior
“We’re called sickle cell warriors because we’re fighters. Even though we experience excruciating bouts of pain, we can overcome.”
Voices of NCD Poverty Advocacy Fellow Leads Workshop on Understanding Global Burden of Sickle Cell Disease
More than 60 clinical experts, civil society members, people living with sickle cell disease (SCD), and NCD advocates from around the world came together on 25 August 2022 to discuss the burden and barriers of accessing care delivery for SCD in rural areas.
Network Promotes PEN-Plus at 4th Global Congress on Sickle Cell Disease
A team that included NCDI Poverty Network Co-Chair Dr. Gene Bukhman, Voices Advocacy Fellow Eunice Owino, and Advocacy & Training Associate Lauren Brown traveled to Paris in June to represent the Network and promote PEN-Plus at the 4th Global Congress on Sickle Cell Disease (SCD).