News and Stories
Network Joins UNICEF in Publishing Report on Childhood Noncommunicable Diseases
The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.
Crises Averted: The Story of Amza Musa
Eight-year-old Amza Musa receives free treatment for his sickle cell disease at the PEN-Plus clinic at Koidu Government Hospital in eastern Sierra Leone.
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Youth Camps Bring Support Beyond Clinical Care
Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.
Springboard for Action
The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.
Photo Gallery: Circle of Life
In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.
Network Publishes Clinical Tools and Programmatic Standards
The Network has published PEN-Plus Clinical Tools and Programmatic Standards, a document aimed at informing clinic planning, budgeting, and operations by providing a crisp definition of PEN-Plus clinical care, including the diagnostic, treatment, and patient support services available.
Improving Access to Care for Sickle Cell Warriors
In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.
Building for the Future
The PEN-Plus clinic in eastern Uganda began as a gathering under a tree and has blossomed into a standalone structure with consultation and treatment rooms, a training center, and a pharmacy.
Network Hosts First Advocacy Summit
Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.
An Underpinning of Research
In advance of the International Conference on PEN-Plus in Africa, the NCDI Poverty Network team compiled research resources on PEN-Plus and other integrated-science healthcare delivery models.
Network Publishes Scoping Review of Sickle Cell Disease Care
NCDI Poverty Network researchers recently published a scoping review of models of care for people with sickle cell disease in low-income and lower-middle-income countries. Their findings confirmed the care limitations the Network has been seeking to overcome through the implementation of the PEN-Plus model.
Surguja Sickle Cell People’s Health Conference in Chhattisgarh, India
Over 400 people came together on 1 October to advocate for the needs of people living with sickle cell disease in Chhattisgarh State in central India.
Undaunted Spirit Despite Dual Diagnoses
“Tawonashe is exactly the kind of patient for whom PEN-Plus was designed,” said Dr. Alvern Mutengerere, project manager for noncommunicable diseases at SolidarMed, the implementing partner for the PEN-Plus clinic in Masvingo.
Language Matters: Both a PEN-Plus Primer and Promise
The NCDI Poverty Network has produced “Language Matters,” a primer intended to sensitize PEN-Plus providers to the communication nuances involved in caring for people living with severe, chronic noncommunicable diseases.
From Patient to Advocate: The Story of Eunice Owino, Sickle Cell Warrior
“We’re called sickle cell warriors because we’re fighters. Even though we experience excruciating bouts of pain, we can overcome.”
Voices of NCD Poverty Advocacy Fellow Leads Workshop on Understanding Global Burden of Sickle Cell Disease
More than 60 clinical experts, civil society members, people living with sickle cell disease (SCD), and NCD advocates from around the world came together on 25 August 2022 to discuss the burden and barriers of accessing care delivery for SCD in rural areas.
Network Promotes PEN-Plus at 4th Global Congress on Sickle Cell Disease
A team that included NCDI Poverty Network Co-Chair Dr. Gene Bukhman, Voices Advocacy Fellow Eunice Owino, and Advocacy & Training Associate Lauren Brown traveled to Paris in June to represent the Network and promote PEN-Plus at the 4th Global Congress on Sickle Cell Disease (SCD).